Aqui ponemos los mensajes que ha dejado Pats, una chica americana que por los
terribles efectos secundarios que padecia despues de someterse a una ETS su
seguridad social se vio obligada a concederla la baja por minusvalia. Este es su
email tagpats23@hotmail.com y
estos son los mensajes que dejo (estan en ingles):http://pub157.ezboard.com/fetsandreversalsfrm12.showMessage?topicID=14.topic
Pats
Member
Posts: 1
(9/17/03 3:28 pm)
Reply Managing Compensatory Sweating
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Do any of you have suggestions on non-medicinal ways to manage CS. I generally only have problems with it in the warm months of the year. When it's 75 or below outside or a normal room temperature, I do not sweat, but if it is humid and warm, or if I'm active, I tend to sweat through a shirt, and often my shorts, in no time.
I have had success using coolmax t-shirts during the summer months because they dry so quickly and hide the sweat better than cotton t-shirts. I often use them as an undershirt, if I'm wearing a dress shirt of a polo shirt. What I could really use is something to keep the sweat from dripping down my back and front into my shorts and getting them soaked. Some sort of sweat band around the waist would be helpful, but I have not located anything like that. It's easier to explain a sweaty back and front, but soaked shorts, is a bit more difficult.
Any tips out there for a heavy sweater post-sympathectomy?
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Pats
Member
Posts: 2
(9/17/03 3:39 pm)
Reply 4 years post-sympathectomy
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I posted a similar message on another forum and was asked by a member of this group to share it here. I share the frustration of many who regret the surgery. While my primary problem of sweating hands has been resolved satisfactorily, I have more significant problems as a result of the surgery. While I do have compensatory sweating on my stomach, back and legs and heat intolerance, which is very uncomfortable during the summer months, I have become disabled by what neurologists believe is autonomic dysfunction (dysautonomia) other than that expected from sympathectomy. I had a positive tilt-table test and my symptoms are consistent with dysautonomia.
My symptoms include dizziness, wooziness, nausea, unsteadiness on my feet, feeling of blood draining from my head and being pulled to the ground, shortness of breath, tremor, shakiness, lethargy, weakness, lack of endurance, feeling not clear of head, spacey, unfocused, visual disturbances, heart palpitations, restlessness in legs and hands.
All of these symptoms gradually developed approximately one year following my surgery. While I believe many of my symptoms are the result of my surgery, the neurologists I have seen are less confident of that because the onset of my symptoms began many months after my surgery. I do believe that anxiety, the so-called fight or flight response, is a factor, but it's tough to determine whether the symptoms are the result of the surgery, the fight or flight response that caused my hands to sweat in the first place, or some combination of the two.
I have slowly come to accept that perhaps there is some logic to the claim that if you had an overactive nervous system which caused excessive sweating, then it's possible that over time the body will simply become overactive in another way. Perhaps the imbalance caused by the surgery is the key problem. In my case, stress and anxiety triggered my hand sweat which started as an isolated incident and then became a persistenet problem I could not control. I suppose just because I had the surgery, does not mean that whatever psychological issues that were driving my hands to sweat have been resolved. Perhaps my nervous system is still overactive and now that I have blocked the sweating response, my body is simply finding a new outlet and causing my strange symptoms. I suppose I will never know.
I am disabled as a result and am no longer working. The collective symptoms I experience are not often discussed by those who have had the surgery. It seems that most complain of thermoregulatory problems, compensatory sweating and fatigue. I would appreciate any feedback on whether others have numerous symptoms like mine and how it impacts their life.
Finally, gradually over the past 4 years or so, I have noticed some moisture return to my hands. Generally this is limited to when I am in a warm environment or doing some physical activity, like exercise. I also notice slight moisture on my hands, arms, and neck sometimes when I eat hot or spicy foods or strangely enough, after sneezing. This gustatory sweating is not bothersome, however. Recently, I have woken up at night and found my right hand sweating. The sweat is limited to my finger tips and heel side of my palm. This strange occurence of sweat on my hands in the middle of the night has happened a few other times over the past few years, but this is a bit more obvious and now generally isolated to my right hand.
I know I have had some nerve regeneration which was demonstrated in a sweat test I had at the Mayo Clinic while having my symptoms evaluated. Perhaps more signals are getting thru during sleep than during the day. Given all of my problems, the last thing I want is to have the return of a sweaty hand added to the list of my problems. Dry, warm hands are the only positive outcome of my surgery. Any of you experience moisture return to your hands in this regard?
I would appreciate any feedback you may have.
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Pats
Member
Posts: 4
(9/17/03 5:28 pm)
Reply Re:
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Happy to share my experience. Feel free to e-mail me if you want to talk about tests, etc.
I am currently on federal disability retirement. I have just completed the last forms for Social Security Disability Insurance. My objective test results are so limited that I'm not sure how it will turn out. Hopefully the fact that I have already been approved for disability from my work will help convince them that my disability is real. Would be happy to answer any questions people have about that. It's a lot of paperwork.